According
to the Centers
for Disease Control and Prevention (CDC), nearly 71 percent of total health
care spending in the United States is associated with care for Americans with
more than one chronic condition. One
in four Americans has multiple chronic conditions (MCC) such as
hypertension, arthritis, diabetes, depression, and lung disease. In 2011,
the Centers for Medicare & Medicaid Services (CMS) found that Medicare
beneficiaries with MCC were the heaviest users of healthcare services. For
those with six or more chronic conditions, two-thirds were hospitalized during
2010 and they accounted for about half of Medicare spending on
hospitalizations. However, very few
measures existi that are specifically designed to
evaluate the quality of care provided to this population of healthcare users.
Recognizing
the importance of care for individuals with MCC, the U.S. Department of Health
& Human Services (HHS) contracted with the National Quality Forum (NQF) to
develop a measurement framework for persons with MCC. The NQF
MCC Measurement Framework defined MCC as follows:
Persons
with MCC are defined as having two or more concurrent chronic conditions that
collectively have an adverse effect on health status, function, or quality of
life and that require complex healthcare management, decision making, or
coordination.
Though
persons with MCC represent a growing proportion of society who use an
increasingly greater amount of healthcare services, there are not enough existing
quality measures to adequately promote best practices for the care of
individuals with MCC. Current quality measures are largely based on performance
standards derived from clinical practice guidelines for management
of specific diseasesii. The randomized clinical trials
used in clinical practice guideline development focus mainly on single diseases
to produce robust guidance for specific disease treatments. Patients with MCC
have often been excluded from the evidence-generating clinical trials that form
the basis of many clinical practice guidelines.
Assessment
of the quality of care provided to the MCC population should consider persons
with two or more concurrent chronic conditions that require ongoing clinical,
behavioral, or developmental care from members of the healthcare team and whose
conditions act together to significantly increase the complexity of management
and coordination of care—including, but not limited to, potential interactions
between conditions and treatmentsiii.
Two
examples of current MCC focused measures include: NQF 2606 and NQF 2888.
- NQF 2606: Diabetes Care for People with Serious Mental
Illness: Blood Pressure Control (<140/90 mm Hg), is an outcome measure
focused on maintaining positive cardiovascular outcomes in individuals
with both mental health conditions and diabetes.
- While NQF 2888, Risk-Standardized Acute Admission Rates
for Patients with Multiple Chronic Conditions, recognizes that individuals
with MCC are at high risk for unplanned hospital admissions.
- Promote collaborative care among providers
- Consider various types of measures (an MCC measure is
not a distinct type, it may be a structure, process, or outcome measure and is often
crosscutting) that address appropriateness of care
- Prioritize optimum outcomes that are jointly
established by considering patient preferences
- Address shared decision making
- Assess care longitudinally
- Be as inclusive as possible
- Illuminate and track disparities through stratification
and other approaches
- Use risk adjustment for comparability (of outcome
measures only) with caution, as it may obscure serious gaps in quality of
care
- Standardize inputs from multiple sources, particularly
patient-reported data.
Attribution
(crediting good outcomes to the appropriate provider) and data collections can
be complicating factors for MCC measure developers and implementers. Since
multiple conditions usually means multiple providers, it becomes difficult to
determine should be credited for good outcomes and which provider gave
inadequate care when the treatment for one condition might exacerbate the
other. These issues may require a more aggregated level of analysis such as at
a provider group level or population rather than individual level. Since
beneficiaries with MCC see multiple providers, it would be more appropriate to
measure and attribute the outcomes for the population to the care provided by
the team of providers. Additionally, there may be difficulties gathering data
systematically, especially for this population. Particularly, patient-reported
data for multiple chronic conditions may be challenging to collect because of
the interacting conditions. For example, it might be difficult to collect
fatigue data from a person with both chronic lung disease and history of
stroke, because each condition may contribute to a patient’s fatigue, and it
may be complicated to assess the contribution of each disease to that fatigue.
Interpretation of different types of data is needed, as the data may come from
multiple providers, multiple sources, in multiple formats, and over extended
periods. It is important for measure developers to standardize data collection
methods.
Despite
these challenges, measures dedicated to improving health outcomes for
individuals with MCC have the potential to dramatically improve the quality and
affordability of care for individuals and communities.
i
National Quality Forum. Multiple Chronic Conditions Measurement Framework, May
2012.
ii Tinetti ME, Bogardus ST, Agostini JV. Potential pitfalls of
disease-specific guidelines for patients with multiple conditions. New England
Journal of Medicine. 2004;351:2870–4.
iii National Quality Forum. Multiple Chronic Conditions
Measurement Framework, May 2012.
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