New Research Grant
Awarded for Advancing Family Support for People with Disabilities
The mission of the project is to facilitate the rapid
translation and dissemination of state-of-the-art research and training
into direct services and support programs designed to improve care, health,
and quality of life of people with disabilities and their families. The
center has four aims: 1) advance state-of-the-science research in
caregiving, rehabilitation; and ehealth self-management support in people
with disabilities and their family caregivers with the goal of maintaining
independent living in the community; 2) train health and rehabilitation
providers and researchers to support families caring for people with
disabilities; 3) leverage findings from center research projects to advance
the capacity of healthcare and public health systems to deliver
high-quality, tailored support to family caregivers of people with
disabilities, and; 4) utilize dynamic mechanisms to translate and
disseminate knowledge to people with disabilities, family caregivers,
policymakers, service providers, researchers, employers, and other key
stakeholders.
Four research projects have been designed at the intersection
of three domains of science: caregiving, disability/rehabilitation, and
ehealth self-management support with the goal of supporting family
caregivers of people with disabilities to maintain independent living in
the community. The projects will: (R1) characterize family support and its
impact on health and quality of life outcomes among people with
disabilities across the lifespan and their family caregivers living in the
community; (R2) develop and evaluate an ImHere mobile health
self-management intervention for family caregivers to be delivered in
conjunction with an existing intervention for patients with brain and
spinal anomalies; (R3) scale-up and disseminate CAPABLE (an established
intervention to support older adults with activity limitations
age-in-place) for family-centered care delivery through a regional
Area Agency on Aging with the goal of increasing access to families who do
not qualify for Medicaid; and (R4) implement and evaluate an mHealth
SmartRehab program (integrating cancer patient and caregiver
self-management interventions with demonstrated efficacy) across a
large healthcare system to optimize return to social participation for
survivors of gynecologic cancer with participation restrictions and their
family caregivers.
The purpose of the RRTC program,
which are funded through the Disability
and Rehabilitation Research Projects and Centers Program, is to
achieve the goals of, and improve the effectiveness of, services authorized
under the Rehabilitation Act through well-designed research, training,
technical assistance, and dissemination activities in important topic areas
as specified by NIDILRR. These activities are designed to benefit
rehabilitation service providers, individuals with disabilities, family
members, and other stakeholders.
Within ACL, NIDILRR works to generate new knowledge and
promote its effective use to improve the abilities of individuals with
disabilities to perform activities of their choice in the community; and to
expand society's capacity to provide full opportunities and accommodations
for people with disabilities. NIDILRR conducts its work through grants that
support research and development.
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