Monday, July 12, 2021

Updated Numbers on the State of Visual Acuity Loss and Blindness in the US

May 13, 2021 Emily Y. Chew, MD1 Author Affiliations Article Information JAMA Ophthalmol. Published online May 13, 2021. doi:10.1001/jamaophthalmol.2021.0521

In this issue of JAMA Ophthalmology, Flaxman et al1 reported the results of their study designed to estimate the rates of visual acuity loss and blindness in the US, including rates for each individual state. Prior published reports2,3 in 2010 and 2015 addressing this issue used different data sets and statistical methodology, resulting in rates for those 40 years and older only. Both studies2,3 suggested the number of individuals older than 40 years affected with vision impairment was approximately 4.2 million in the US. The results of the current study1 of the population of all ages estimated the rate to be much higher, at 7.08 million people living in the US with visual acuity loss, defined as 20/40 or worse, with 1.08 million of these having blindness, defined as visual acuity of 20/200 or worse. These are important data that need to be explored further.

Methods

The current study1 analyzed a greater number of studies, including the classic population-based studies and data from the US Centers for Disease Control and Prevention’s Vision and Eye Health Surveillance, which provide data on both national and state-specific rates of visual acuity loss using insurance claims, registries of electronic health records, and self-reported data from national surveys that included populations of all ages and were stratified by race/ethnicity and sex. Flaxman et al1 recognized the importance of analyzing more granular data found in state-reported rates because of the differences found in population demographics and risk factors for visual acuity loss, including comorbidities such as diabetes, health care access, social determinants of health, and lifestyle factors, such as nutrition and smoking.

The use of the bayesian meta-analysis methods in this study may be superior in estimating between-study heterogeneity and pooled effects, especially when there is a relatively small number of studies, as found by Flaxman et al.1 Summarizing using various sources of data in a single meta-analysis is the innovative part of this approach. The bayesian methods also allow the researchers1 to integrate prior knowledge and assumptions when calculating the meta-analyses.

Other Results

The overall prevalence of visual acuity loss in the US was 7.08 (95% uncertainty interval [UI], 6.32-7.89) million, translating to a crude prevalence rate of 2.17% (95% UI, 1.94%-2.42%).1 Not surprisingly, the prevalence of visual acuity loss or blindness increased with age, from 0.74% (95% UI, 0.37%-1.10%) for those younger than 12 years, to 0.99% (95% UI, 0.80%-1.18%) among those aged 50 to 54 years and 20.73% (95% UI, 17.71%-23.27%) among persons 85 years and older. As expected, a range of rates of visual acuity loss was found in different states. Interestingly, approximately 22.89% of those with visual acuity loss or blindness were younger than 40 years. Similar to previous analyses of the National Health and Nutrition Examination Survey data, the current study1 estimated higher prevalence in Black and Hispanic individuals compared with White individuals and women compared with men. However, these probabilities of differences between sex and race/ethnicity crossed zero and were not statistically significant.

Importance of These Data

These data1 underscore the burden of blindness in the US. Visual acuity loss is considered one of the most dreaded events that individuals in the US fear compared with loss of speech, hearing, or memory.4 In addition, it is important to obtain accurate prevalence and eventually incidence data on visual impairment and blindness, because they have compelling public health implications. With this large increase in the numbers of US individuals who will experience visual acuity loss or blindness, we need to prepare to the health care systems to serve affected individuals. These estimates will also help to promote potential screening and public health education for select ocular diseases that have effective therapies that may be given either as preventive therapy or active treatment to preserve visual acuity.

Although the study results1 were not statistically significant, the trends are similar to other studies5 that have found women to have increased burden of blindness. Data suggesting an increased rates of visual acuity loss in women does elevate the alert level to consider conducting important studies in assessing sex as a biological variable, as promoted by the National Institutes of Health.6 Others have highlighted the excessive burden on Black and Hispanic individuals,7 again similar to what was found in this current study. The trends of these studies should serve as notice to keep these issues central to future research.

If indeed these rates are valid, 1 in 5 individuals with visual acuity loss include those younger than 40 years. Although some might have uncorrected refractive errors, for those with irreversible causes of blindness, it implies a lifetime of vision burden. Again, the public health importance of this would inform how to approach future investigations, such as screening.

Next Steps

Some of the limitations of this study1 include the lack of eye examination–based data in some of the studies from which self-reports of visual acuity loss were obtained. The collection of new, examination-based data on best-corrected visual acuity in the better-seeing eye would offer a more precise and comprehensive rate of visual acuity loss. Another limitation of this study is the lack of diagnoses associated with visual acuity loss. This was not a focus of this current meta-analysis. But knowing the main causes of blindness would indeed be logical data to obtain to better understand the burden of visual acuity loss.

The classic population-based studies provided enormously important data on prevalence and incidence of eye diseases and visual impairment by race/ethnicity, sex, age, and other important risk factors. As noted by the authors,1 these studies are now fairly dated. The demographics of the population in the US have shifted markedly and will continue to change over the next decades. The classic epidemiologic studies may not be the answer. What would be the next appropriate step in the studies of epidemiology of ocular diseases? No one researcher or institution has the perfect solution to this problem. Perhaps collective brainstorming on this topic may help us best design studies that can provide more precise estimate of the burden of visual acuity loss, which remains an important concern for US people. Guidance may also be provided by esteemed colleagues at the US Centers for Disease Control and Prevention and their collaborators, who have provided such important data on the public health importance of visual acuity loss in the United States.

Corresponding Author: Emily Y. Chew, MD, Division of Epidemiology and Clinical Applications, National Eye Institute/National Institutes of Health, 10 Center Dr, MSC 1204, Bldg 10, CRC Room 3-2531, Bethesda, MD 20892-1204 (echew@nei.nih.gov).

Published Online: May 13, 2021. doi:10.1001/jamaophthalmol.2021.0521

Conflict of Interest Disclosures: None reported.

References

1. Flaxman  AD, Wittenborn  JS, Robalik  T,  et al; the Vision and Eye Health Surveillance System Study Group.  Prevalence of visual acuity loss or blindness in the US: a bayesian meta-analysis.   JAMA Ophthalmol. Published May 13, 2021. doi:10.1001/jamaophthalmol.2021.0527
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2. Varma  R, Vajaranant  TS, Burkemper  B,  et al.  Visual impairment and blindness in adults in the United States: demographic and geographic variations from 2015 to 2050.   JAMA Ophthalmol. 2016;134(7):802-809. doi:10.1001/jamaophthalmol.2016.1284
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3. Friedman  D. Vision problems in the U.S. 2012. Published 2012. Accessed September 6, 2019. http://www.visionproblemsus.org/

4. Scott  AW, Bressler  NM, Ffolkes  S, Wittenborn  JS, Jorkasky  J.  Public attitudes about eye and vision heath.   JAMA Ophthalmol. 2016;134(10):1111-1118. doi:10.1001/jamaophthalmol.2016.2627
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5. Clayton  JA, Davis  AF.  Sex/gender disparities and women’s eye health.   Curr Eye Res. 2015;40(2):102-109. doi:10.3109/02713683.2014.986333PubMedGoogle ScholarCrossref

6. Clayton  JA.  Applying the new SABV (sex as a biological variable) policy to research and clinical care.   Physiol Behav. 2018;187:2-5. doi:10.1016/j.physbeh.2017.08.012PubMedGoogle ScholarCrossref

7. Zambelli-Weiner  A, Crews  JE, Friedman  DS.  Disparities in adult vision health in the United States.   Am J Ophthalmol. 2012;154(6)(suppl):S23-30.e1. doi:10.1016/j.ajo.2012.03.018PubMedGoogle ScholarCrossref

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