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Today the U.S. Department of Health and Human Services (HHS),
through its Administration for Community Living (ACL), released the 2022 National
Strategy to Support Family Caregivers . It highlights nearly 350
actions the federal government will take to support family caregivers in
the coming year and more than 150 actions that can be adopted at other
levels of government and across the private sector to build a system to
support family caregivers. Family caregivers – who provide the overwhelming
majority of long-term care in the United States – currently lack resources
to maintain their health, wellbeing, and financial security while providing
crucial support for others.
“Supporting family caregivers is an urgent public health
issue, exacerbated by the long-term effects of the COVID-19 pandemic,” said
HHS Secretary Xavier Becerra. “This national strategy recognizes the
critical role family caregivers play in a loved one’s life. I know the
importance of this first-hand, as someone who cared for my late father and
navigated the challenges associated with caregiving.”
“At some point in our lives, most of us will either be a
family caregiver or need one. Many of us will experience both,” said Acting
ACL Administrator and Assistant Secretary for Aging Alison Barkoff. “This
strategy presents a vision, along with recommendations for achieving it.
Bringing that vision to life will require contributions and commitments
from every sector, every level of government – and all of us – and ACL is
proud to help lead that work.”
The strategy was developed jointly by the advisory councils
established by the Recognize,
Assist, Include, Support, and Engage (RAISE) Family Caregivers Act and
the Supporting
Grandparents Raising Grandchildren (SGRG) Act , with extensive input
from family caregivers, the people they support, and other stakeholders.
ACL leads implementation of the RAISE and SGRG Acts and facilitates the
work of the two advisory councils.
Each year, around 53 million people provide a broad range of
assistance to support the health, quality of life, and independence of a
person close to them who needs assistance as they age or due to a
disability or chronic health condition. Another 2.7 million grandparent
caregivers – and an unknown number of other relative caregivers – open
their arms and homes each year to millions of children who cannot remain
with their parents. Millions of older adults and people with disabilities
would not be able to live in their communities without this essential
support – and replacing it with paid services would cost an estimated $470
billion each year.
While family caregiving is rewarding, it can be challenging,
and when caregivers do not have the support they need, their health,
wellbeing, and quality of life often suffer. Their financial future can
also be put at risk; lost income due to family caregiving is estimated at
$522 billion each year. When the challenges become overwhelming and family
caregivers no longer can provide support, the people they care for often
are left with no choices except moving to nursing homes and other
institutions or to foster care – the cost of which is typically borne by
taxpayers.
The strategy represents the first time a broad cross-section
of the federal government has collaborated with the private sector on a
response to the longstanding national need for a comprehensive system of
family caregiver support. It is the product of comprehensive analysis and
input from 15 federal agencies and more than 150 organizations representing
a range of stakeholders from across the nation. It builds upon the initial
reports delivered to Congress in 2021 by the RAISE Family Caregiving
Advisory Council and the SGRG Advisory Council.
“The importance of relatives and kinship caregivers and their
role in helping children thrive cannot be understated,” said January
Contreras, Assistant Secretary for the Administration for Children and
Families (ACF). “ACF welcomes this National Strategy because it amplifies
the actions we can take to support kinship families, and it reflects what
we hear every day from caregivers and children living with relatives.
Across the country, a child’s ability to rebound from a traumatic
experience is often dependent on the swift and loving support from a
kinship caregiver. This ACL National Strategy provides a roadmap to support
them.”
“At the Indian Health Service (IHS), we support the emotional
and spiritual well-being of American Indian and Alaska Native people,
especially those who care for our elder population,” said IHS Acting
Director Elizabeth Fowler. “The care that caregivers provide can be
physically and emotionally demanding and can lead to an increased risk for
negative health effects including depression, anxiety, and stress. The IHS
is committed to working closely with tribes and urban Indian organizations
and partnering with agencies across the federal government to support
programs that prioritize the health and well-being of caregivers who care
for our relatives.”
“This strategy exemplifies our commitment to achieving health
equity and providing better support to caregivers.” said CDC Acting
Principal Deputy Director Debra Houry. “Providing fast, readily available
data can help to identify and implement strategies to reduce the challenges
and needs caregivers often face.”
“Supporting family caregivers is commonsense, since most
people will at some point in their lives be a family caregiver, need a
family caregiver, or both. Caregivers are sacrificing for their loved ones
and often are standing in the health care gap by providing that care,” said
Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita
Brooks-LaSure. “Many of the more than 150 million people who receive health
care coverage through Medicare, Medicaid, and the Health Insurance
Marketplaces® rely on trusted friends and family for care. CMS is committed
to advancing home and community-based services and other forms of caregiver
support across the lifespan to give caregivers the recognition and
resources they need and deserve.”
“Family caregivers continue to be the life-sustaining force of
our health care system – a fact that became even more clear during the
pandemic,” said Health Resources and Services Administration (HRSA)
Administrator Carole Johnson. “The National Strategy to Support Family
Caregivers is an important step forward in valuing their role and
recognizing the work necessary to better support family caregivers going
forward.”
“Family caregivers play a vital role in supporting people with
disabilities and older adults so they can live and thrive in their own
homes and communities, and it is time that we take action to champion
them,” said Office for Civil Rights Director Melanie Fontes Rainer. “The
National Strategy to Support Family Caregivers is a concrete step toward
making the right to community living a reality for all people, in keeping
with federal law and the Supreme Court’s Olmstead decision."
“America’s family caregivers, whether caring for children,
young adults or older relatives, frequently experience high levels of
stress, frustration and exhaustion,” said Assistant Secretary for Mental
Health and Substance Use, and the leader of SAMHSA, Miriam E.
Delphin-Rittmon. “For those caring for people with mental illness or
substance use disorders, it can be especially difficult to know where to
turn for help. This National Strategy lays out the crucial actions we are
taking with partners across the country to increase access to the services
and supports our families deserve.”
The Strategy will be updated every two years. The updates will
be based on public input, as well as the continued work of the advisory
councils and communities, states and tribes, and federal agencies that are
developing, implementing, and adapting policies and programs to support
family caregivers.
The 2022 National Strategy to Support Family Caregivers was
delivered to the U.S. Senate Committee on Health, Education, Labor and
Pensions, the U.S. House Committee on Education and Labor, and to the state
agencies responsible for carrying out family caregiver programs. The
strategy will be updated every two years, as required by the Recognize,
Assist, Include, Support, and Engage (RAISE) Family Caregivers Act of 2017
(Public Law 115-119).
Learn more about the RAISE Family Caregiving Advisory Council
at acl.gov/RAISE and the Advisory Council to Support
Grandparents Raising Grandchildren at acl.gov/SGRG.
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