By Carmen Heredia Rodriguez NOVEMBER 13, 2018
When
mental illness hijacks Margaret Rodgers’ mind, she acts out.
Rodgers,
35, lives with depression and bipolar disorder. When left unchecked, the
conditions drive the Alabama woman to excessive spending, crying and mania.
Last
autumn, Rodgers felt her mind unraveling. Living in Birmingham, she was
uninsured, unable to afford treatment and in the throes of a divorce. Although
Rodgers traveled south to her brother’s house in Foley, Ala., for respite, she
couldn’t escape thoughts of suicide, which one day led her to his gun.
“I hit
bottom,” she recalled. But she didn’t pull the trigger.
Rodgers
told her brother about the close call. News of the incident reached her mother,
who then alerted authorities to Rodgers’ near attempt.
Within
days, Rodgers was handcuffed and hauled in front of a judge who ordered her to
undergo mental health treatment — but not a hospital commitment. Instead, the
judge mandated six months of care that included weekly therapy sessions and
medication, all while Rodgers continued living with her family.
Rodgers
entered assisted outpatient treatment, also known as involuntary outpatient
commitment.
Since
its inception, the court-ordered intervention has generated controversy.
Proponents say it secures the comprehensive care that people with severe mental
illnesses might not recognize they need. Yet other health experts question the
effectiveness of the intervention and suggest it represents a quick fix in a
mental health system that is not adequately serving patients.
“It’s a
stopgap measure that works in the short term,” said Dr. Annette Hanson,
director of the University of Maryland Forensic Psychiatry Fellowship, who
co-authored a book on the intervention. “But it’s not a good long-term solution
because you still have lots of people who need voluntary care who can’t get”
it.
Assisted
outpatient treatment requires a judge’s order. While the eligibility
requirements and compliance standards vary by state, participants typically
have a history of arrests and multiple hospitalizations. They stay in their
communities while undergoing treatment.
The
American Psychiatric Association endorsed its use
in 2015, saying assisted outpatient treatment has generally shown
positive outcomes under certain circumstances. To effectively treat patients,
the position paper said, the APA recommends that the intervention be
well-planned, “linked to intensive outpatient services” and last for at least
180 days.
A key
advantage to assisted outpatient treatment, supporters say, is that it provides
care for people who might not recognize the severity of their illness.
A
court’s involvement also increases the likelihood of a participant complying
with the program, a phenomenon called the “black robe effect,” they add.
“That
is really what we’ve found to be the secret sauce” for success, said John
Snook, executive director of the nonprofit Treatment Advocacy Center.
But
many areas do not have the necessary community mental health services to
provide assisted outpatient treatment effectively, said Ira Burnim, legal
director for the Judge David L. Bazelon Center for Mental Health Law.
He also
said the law already provides options for hospital treatment for people
considered a danger to themselves or others. Any person recommended for
assisted outpatient treatment for these reasons should be in a hospital
receiving intensive inpatient care, Burnim said, not in the community.
“You
know, when people don’t take their medication,” he said, “that’s a clinical
problem, not a legal problem.”
Most
States Allow The Programs
Assisted
outpatient treatment gained popularity after
Andrew Goldstein, who was diagnosed with schizophrenia but wasn’t taking his
medication, pushed Kendra Webdale in front of an oncoming train in New York
City in 1999, killing her. Webdale’s family fought for a change in the law
after learning that Goldstein had repeatedly refused treatment while living on
his own.
Today,
47 states and the District of Columbia have laws allowing localities to set up
assisted outpatient treatment, according to the Treatment Advocacy Center, a
nonprofit group that strongly supports assisted outpatient treatment.
Yet,
there is no tally of the number of programs or the number of people
involuntarily placed in one, said David DeVoursney, chief of the Community Support
Programs Branch at the Substance Abuse and Mental Health Services
Administration.
There
is also little research on its effectiveness. Two randomized studies produced
contradictory results about the intervention’s effect on hospitalization rates and the number of arrests afterward. However,
other analyses have shown improved outcomes, particularly among participants in New York.
Despite
the ambiguity, Congress created grants in 2014 that
made up to $60 million available over four years to new assisted outpatient
treatment programs. Additionally, the 21st Century Cures
Act, passed in 2016 to accelerate drug development, allowed some
Department of Justice funding for the intervention.
Experts
acknowledge that the scarcity of mental health providers and treatment options
causes many patients to go without care. Instead of doctors’ offices, many
people with mental illnesses end up in jail — an estimated 2 million every
year, according to the National Alliance on Mental Illness.
“What
we say very often is basically we have a system that allows people to have
heart attacks over and over again,” Snook said. “And then once they have that
heart attack, we take them to jail. And then we wonder why the system isn’t
working.”
A
Morning Surprise
One
recipient of federal funding is AltaPointe Health Systems Inc., a community
health center that provides services to residents — including Rodgers — in two
Alabama counties. The program has received nearly $1.1 million in federal
funding, according to Cindy Gipson, assistant director of intensive services.
She
said the center applied for the federal grant to reduce the number of
hospitalizations among residents living with severe mental illnesses.
“We
were having a lot of people who would go to the hospital, then be discharged,”
she said. “And they’d do well for a couple of weeks — maybe even a month. Then,
they’d go right back in.”
The
program, which began in 2017, has served 71 patients, Gipson said. On average,
patients stay about 150 days. And roughly 60 percent of referrals come from
family members, she said. The majority of people entering have a history of
multiple hospitalizations and arrests.
Rodgers
said she had never been in handcuffs before the day the Alabama police officer
came to her brother’s home and awakened her around 7 a.m. The sheriff gave her
five minutes to change and brush her teeth. He then cuffed her wrists, placed
her in the back of his car and drove her straight to court. After she was asked
a few questions about how she was doing, Rodgers said, she sat down in front of
a judge and learned about assisted outpatient treatment for the first time.
Despite
how she entered care, Rodgers said the mandated treatment has brought her
stability. She sees a therapist once a week, and once a month a nurse at the
community health center administers a shot of the antipsychotic drug Abilify.
She now is working part time cleaning condos and lives with her mother. She
said she has learned strategies to not dwell on the past.
After
her first six months of treatment, Rodgers and her care team decided to
continue care through the rest of the year. She plans to return to Birmingham
and find a better job after completing the program.
Right
now, she said, “staying positive is the main thing I want.”
Carmen
Heredia Rodriguez: CarmenH@kff.org, @ByCHRodriguez
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