Tuesday, October 4, 2022

How the 2014 Ice Bucket Challenge Spurred ALS Research

 

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John Blanding/The Boston Globe via Getty Images

 

You probably saw countless videos of it, and may have even participated yourself, but the ice bucket challenge of 2014 likely seems like a fad of the past now. For the scientists researching ALS treatments and the thousands of people suffering from the illness worldwide, though, it’s very much of the present.

The trend involved people pouring ice-cold pails of water over their heads, and then challenging a friend on social media to follow suit, all to raise money for amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease.

According to Calaneet Balas, president and CEO of the ALS Association, the funding has “dramatically accelerated the fight against ALS.” Most recently, $2.2 million raised from the challenge helped with the development of a new drug called AMX0035 that just got approved by the Food and Drug Administration. The drug does not cure the fatal disease, which affects one’s motor neurons, but slows its progression.

“We thank the millions of people who donated, participated, and enabled us to invest in promising therapies like AMX0035 that will immediately help people living with ALS,” Balas said in a press release. “This is a victory for the entire ALS community.”

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