By Gwen Nichols, MD, LLS Chief Medical Officer | March, 2020
Whether you are self-quarantining or practicing
social distancing, we all are adjusting to a new normal amid the coronavirus
disease (COVID-19) pandemic. Everyone reacts differently to stressful
situations. As a patient or survivor, you might be experiencing feelings of
isolation, uncertainty and anxiety. As a caregiver, you might be feeling
overwhelmed with navigating your loved one’s care while looking after your own
needs. And as a family member, you might be feeling unsure of how you can help.
This is understandable, and you are not alone.
The Leukemia & Lymphoma Society (LLS) is
here to help. I encourage blood
cancer patients, survivors, caregivers and families to contact our Information
Specialists for free, one-on-one support. LLS Information Specialists –
master’s level oncology professionals – are available by phone at
800-955-4572 or by email or chat at this link. I also urge you to speak with your
healthcare team.
While this is a stressful time, there are a few
things we can do to tend to our physical and emotional needs. Not only can
these self-care practices help us cope with isolation and stress, but also keep
us feeling our best all year long.
*A quick note on terminology: you might be
hearing two terms in the news, SARS-CoV-2 and COVID-19. SARS-CoV-2 refers to
severe acute respiratory syndrome coronavirus 2, which is the virus that causes
coronavirus disease (COVID-19). Learn more here.
10 Self-Care Tips
1) Practice good hygiene. Blood cancer patients are not at greater risk of
catching SARS-CoV-2, but because of your diagnosis you might be at a greater
risk of getting sicker if you do get the virus. You should be extra vigilant
about precautions outlined by the U.S. Centers for Disease Control and Prevention (CDC) such
as hand washing, avoiding crowds and cleaning your home routinely.
2) Eat well. Good nutrition can help support a healthy
immune system. Follow a plant-based, heart-healthy
menu that incorporates a variety of vegetables and fruits, whole grains,
lean protein, and healthy fats. Eat small, frequent meals throughout the day to
stay energized and to ensure your body is getting enough calories, proteins,
and nutrients. LLS provides PearlPoint Nutrition Services® to
patients and caregivers of all cancer types, offering free nutrition education
and consultations. Learn more here.
3) Get enough sleep. Make sure you’re getting good, quality
sleep. The CDC recommends that adults get seven hours or more
of sleep every night. If you have difficulty sleeping, try these Tips for Managing Insomnia or Difficulty Sleeping and
talk to your healthcare team. To improve your sleep quality, try going to bed
at the same time every night. If you need to rest, keep naps to 30 minutes or
less.
4) Exercise regularly. Regular exercise can help support your
immune system and promote good cardiovascular health. The American Institute
for Cancer Research (AICR) recommends getting at least 150 minutes of moderate
activity or 75 minutes of vigorous, physical activity a week. Depending on your
age, where you are in your treatment, and your present state of fitness, you
might need to modify exercise routines, but spending some time moving and being
active is critical for physical and mental health. YouTube offers free
exercise routines that you can do at home, such as this
example from The University of Texas MD Anderson Cancer Center.
Many fitness studios are offering live streams of their classes, too.
5) Stay in touch. Write letters to your family, start a Google
hangout with your co-workers, or FaceTime with your friends. LLS offers online
chats, our Patti Robinson Kaufmann
First Connection Program, and our online social
network LLS
Patient Community for blood cancer patients, survivors,
caregivers and families.
6) Do calming activities that you
enjoy. Cozy up with a good
book, start an arts-and-crafts project, or listen to music. If you’re a fan of
podcasts, tune in to The Bloodline with LLS for
patients and caregivers. Try streaming services, board games and/or online
games for more entertainment.
7) Express yourself. Whether putting pen to paper, blogging,
capturing videos or scrapbooking, journaling can help you cope with your
feelings. Find the format that works best for you, from stream of consciousness
writing to line-a-day or bullet journaling. Our Young Adult Journal is a great option that can be
used by anyone.
8) Get organized. If you’re working from home, create a dedicated
space for work and break up tasks into bite-sized pieces. To help manage your
daily health, download the LLS Health ManagerTM App on your
phone. You can track side effects, medication, food and hydration, questions
for the doctor, grocery lists and more.
9) Ask for help and accept help when it is
offered. Ask someone to
pick up groceries or medications for you. If you’re a caregiver, find
support here.
10) Take time to talk with your family. Answer questions and share facts about COVID-19 in a way that your
children can understand. Be a role model by showing your family how you cope
with stress in healthy ways. Learn more here.
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