Where to find services and support for family caregiving
AARP, Updated October 28,
2019 | Comments: 6
En español | Caregiving presents an array of challenges, from
maintaining your loved one’s (and your) physical and emotional health to
meeting medical needs, finding financial resources and arranging long-term
care.
The following agencies, groups and
organizations connect family caregivers with direct services and supports and
offer a variety of information resources, including care guides, how-to videos,
tip sheets and webinars.
Information, services and support
877-333-5885 (888-971-2013 for Spanish)
Along with comprehensive coverage of issues
affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also
call our caregiver support line for one-on-one help.
855-CARE-640
Information, educational materials and support
for family caregivers.
A project of AARP and the Alzheimer’s
Association that provides easy access to Alzheimer’s and dementia resources,
community programs, medical services and long-term care options in your area.
800-677-1116
Connects caregivers to area agencies on aging
and other local resources for finding respite care, insurance counseling,
transportation and other services for older Americans and family members.
800-445-8106
Information, education and support groups for
family caregivers, including the Family Care Navigator, a state-by-state list
of services and assistance.
202-918-1013
A coalition of national organizations focused
on family caregiving issues. The alliance conducts policy analysis and tracks
legislation and initiatives that affect caregivers and care recipients.
800-950-6264
Grassroots alliance of local organizations
offering information, resource referrals and peer-to-peer support for people
living with mental illness, their family members and caregivers.
800-222-2225
An arm of the National Institutes of Health,
NIA offers extensive online information on common age-related health problems,
including a section on caregiving for people with serious health issues.
800-838-0879
Provides support for spousal caregivers, including
a national network of support groups and an online chat forum.
Alzheimer’s and dementia
800-272-3900
Information and support for people with
Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day
and offers care navigator tools.
800-438-4380
A federal government website focusing on
Alzheimer’s and dementia care, research and support, including resources for
caregivers.
Lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other
facilities to help people with dementia and other cognitive issues, as well as
their caregivers, combat social isolation and connect with others in similar
situations.
AARP care guides
AARP’s free planning guides help family caregivers
adjust to the job and make it more manageable. Follow the links to download:
In-depth information and advice on starting
vital conversations with older family members, organizing important documents,
assessing your loved one’s needs and finding key resources. Prepare to Care is
also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families.
A road map to meeting the unique challenges of
caring for a wounded, ill or aging veteran or service member. AARP has also
produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving
responsibilities.
These online guides offer customized help for
specific scenarios, such as long-distance caregiving and caring for a loved one with cancer or dementia.
Cancer
800-227-2345
Offers caregiver and family resources, including a Caregiver Resource Guide available in interactive or downloadable form, videos, and other educational and support
materials.
800-4-CANCER
Information and research for caregivers serving cancer patients, including downloadable booklets
on caregiver resources and self-care.
888-793-9355
Connects cancer patients and their caregivers
through a global network of support organizations and the online
community MyLifeLine.
Hospice and palliative care
A directory from the nonprofit Center to
Advance Palliative Care that lets you search for providers of palliative care
in your area.
Search tool to find hospice providers in your
area who participate in Medicare and to how they rank against national averages
in areas such as family experience and quality of care.
800-854-3402
Professional organization for hospice
providers that offers practical tips and advice on family caregiving and
hospice.
In-home care
800-368-5242
The industry group offers a certified aging-in-place specialist (CAPS) designation for builders who
specialize in designs and modifications to help older adults continue to live
at home. Consult their directory for a specialist near you.
Search tool that lets you find and compare
Medicare-certified home health agencies in your area, with information on
services provided and patient ratings.
Legal and financial help
877-267-2323
Medicaid provides health coverage for people
with limited income and assets, and unlike Medicare it can help pay for long-term care such as in a nursing home. Medicaid
coverage differs from state to state. Contact your state agency with questions.
800-MEDICARE
The federal health program for people age 65
and older or disabled covers home health and skilled nursing services in some circumstances, and its website
has tools to help you find care facilities and providers that accept Medicare.
Nonprofit association of lawyers and
organizations that provide legal services for older adults and people with
special needs. You can use its site to find lawyers in your area who specialize in long-term care, power of
attorney and other aging and caregiving issues.
SHIPs, as they’re called, offer local
insurance counseling and assistance to Medicare recipients and their families and
caregivers.
Long-term care
Online clearinghouse for information and tools
to plan for your or your loved one’s long-term care needs, maintained by the
federal Administration for Community Living.
202-842-4444
An arm of the American Health Care
Association, NCAL offers consumer resources on finding assisted living facilities
and related programs in your state and information on payment options.
Searchable database with information on every
Medicare- and Medicaid-certified nursing home in the country.
Department of Veterans Affairs guide to
long-term services and supports for older military veterans, including VA nursing homes, other senior residences and help with
home-based care.
Military caregivers
855-260-3274
The federal agency responsible for providing
health care services and other vital benefits to eligible U.S. military
veterans has a Caregiver Support Program that offers peer support, mentoring,
caregiver training programs and a helpline.
202-249-7170
Works to strengthen services for Americans
caring for wounded, ill or injured family members who served in the military.
Its programs include Hidden Heroes, an online support community for military caregivers.
American Red Cross-affiliated network of
online and community-based support groups and mentoring programs for caregivers
of service members and veterans.
800-342-9647
A Department of Defense-financed program that
provides resources and support to active-duty, National Guard and Reserve
service members and their families, including counseling and consulting services for caregivers.
Respite care
Find programs and services that allow
caregivers to get a break from caring for a loved one. The National Respite
Locator is a
state-by-state list of services and assistance.
Professional organization for providers of
adult day care with consumer resources including an adult day care locator and advice on evaluating and choosing a
local center for your loved one.
800-942-2677
The national service network’s Senior Companions program matches older volunteers with seniors who have
trouble with daily tasks, helping them live independently and providing respite
for family caregivers.
Editor's note: This
resource, originally created in 2017, has been expanded and updated with more
recent information.
Learn More
·
Resources that help pay for in-home caregiving help
Resources that can help with financial assistance for caregiving
Resources that can help with financial assistance for caregiving
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